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I had the misfortune of suffering through a multiple sclerosis diagnosis when I was just 18-years-old, and the bottom line cost for that (only outpatient care) was approaching $50k in 2001. I imagine that price has more than doubled since. It caused my financial condition and professional development to crash and stall just as it was beginning. It’s impossible to know what might have been, but I sincerely believe that my circumstances, and the limited options for mitigating their long term effects, cost me (and by extension, society) at least 10x that initial bottom line cost in missed opportunities, and lost productivity/wages.

What makes the issue so terribly entrenched, apart from our peculiar association between health insurance and employment, is how utterly opaque everything about healthcare costs are. Both systemically, in that it’s much more difficult to craft policy, as well as practically, in that for many (most?) individuals it can be impossible to know in advance how much any given course of treatment might cost, and no opportunities for “shopping around” or price comparisons.

For most Americans, and companies, I think our healthcare system is essentially a very short-sighted and inefficient tax. For others—people in situations such as mine, and very probably for a meaningful portion of the ~30M-50M Americans still uninsured/underinsured—it’s an unreasonably high burden that accounts for so much more than just the money spent, and a constant specter clouding their lives in uncertainty and risks. For the self-employed and entrepreneurs, it’s a crucial consideration that defies simple calculations, and just by the averages will have prevented a significant number of potential endeavors from ever leaving the initial planning stage and/or denied startups access to otherwise valuable talent. We should be pursuing bigger picture policies, and while I’m not arguing that the federal government is a good answer to everything, it’s clearly the answer to this kind of management of universal needs with clear societal benefits.

Sorry for the lengthy comment, my hamster brain was apparently restless. For anyone who did, thanks for taking the time to read.



Thanks for sharing your story.

It’s a tragedy that universal healthcare and tougher regulation against unhealthy food is still not achieved.

If you don’t mind me asking, what advice would you share to deal with such diagnosis and making it through?




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