I think you aren't helped by the studies that have been done on people who have self-diagnosed 'hyper-sensitivity', that have shown that they can't reliably detect EMFs.
This leads people to think that this means that no-one can be effected, whereas it could be that the self-diagnosed simply have a large false-positive (a high-proportion of people that while believing to, do not have any hypersensitivity).
It also doesn't help that there have been no proposed mechanism by which EMF could act on the CNS/body. It also doesn't help that usually the signals complained about are orders of magnitudes smaller to other signals that people might just not be aware of/think about, like TV/Radio transmissions.
You're right that it's not very easy being in the fringes, here's hoping you get better.
Before answering further, please ask yourself what's more important to you: feeling "right" about something on which you have a pre-determined belief, or listening to and fully considering the experiences of someone who has a strong personal incentive to understand this issue more thoroughly than most people do.
I haven't diagnosed myself with "EMF hypersensitivity", or hypersensitivity to anything else (I'm not a voluntary gluten-avoider, or heavy consumer of organic kale or chia seeds or any other faddish "superfoods").
I'm surrounded by EMF all day from the iPhone in my pocket, the Wi-Fi enabled laptop on my lap, and the Bluetooth sound system in my car, not to mention all the incidental EMF that you mention. And I don't have any belief that any of it is a major problem, any more than the full-gluten bread and pasta I eat, the red meat I enjoy, or the red wine and beer I drink - all in moderation of course.
Over the 10+ years I've been dealing with this illness, I've tried living with and without all of these and many other things, and have developed a very good sense of what my body tolerates well and what it doesn't.
One thing I know very well is that my sleep is of lower quality when I have a transmitting cellphone right beside my head all night.
And whilst I don't need lab studies to convince myself, for your benefit I can point to some studies [1] and a perfectly plausible mechanism for why this is the case, which is that the phone transmissions alter brain waves (i.e., Alpha, Beta, Theta, Delta), which play a significant role in sleep quality. (Speaking of which, I've personally had good success improving my sleep by entraining my brainwaves through the use of binaural beats [2] – indeed this is one of the very reasons I use the headphones while sleeping in the first place.)
Whether this will also be the case with Bluetooth, I don't know - I'm open-minded either way. As I've always done, at some point I'll experiment and go with what enables me to sleep and feel my best. But in the short term I'll stick with what has been working well for me up till now.
You're right that it's not very easy being in the fringes, here's hoping you get better.
Made all the more difficult when your conversations on the topic so often tend towards patronising misappropriations of science to dismiss your experiences.
But for what it's worth, my health (and sleep) is the best it's been in at least 5 years, and continuing to improve at an increasing rate, thanks.
My apologies if my reply came across as patronising/dismissive, it wasn't my intent.
I wasn't trying to lump you into the group of people self-diagnosed with 'EM hypersensitivity', but explain why some people find it hard to believe when people profess to having issues with mobile phones/wifi etc. If there are a vocal majority of people who make claims that can't be backed up, the minority of people who have valid claims will suffer.
My original comment back up the chain was to a comment that looked logically inconsistent regarding bluetooth power output vs. a mobile phone overall. Yours was perfectly reasonable.
I had read about that mobile-phone/brainwave study before, and I'm sure that given time we'll understand more about how EMFs do interact (however subtly) with the body. It is worth noting that I think bluetooth power output is many orders of magnitudes lower than having your phone communicating with a tower.
Lastly, have you looked into getting a femtocell for your flat/house? Could help reduce the power output of your phone overall when you're at home.
The whole issue is very complex, that's for sure. The extent to which these kinds of "illnesses" or "sensitivities", in myself or others, are "all in the mind" or "imaginary" is something I've considered and researched very heavily, and found it to be applicable to a significant degree.
But to someone who is in distress/pain/fatigue, the retort - whether from a doctor, a well-intentioned layperson or an insensitive asshole - that "it's all in your mind" or a "placebo/nocebo", is unhelpful and simplistic, particularly if you accept that the mind and body are all one entity anyway.
And then there is the reality, that you acknowledge, that certain effects are too subtle to be observed with current measurement technologies and diagnostic methods, inevitably leading to both false positives and false negatives.
In my case, the key to getting well has been to address all aspects, including diet, environment, and mind/emotions - the latter of which has had the most significant effect. Which puts me in a position to say "yes, in fact it probably really is the placebo effect, and I've used it to recover from having really terrible health to having great health", to which the next standard response from curmudgeonly skeptics is "the placebo effect doesn't actually change anything about your health, it only makes you feel better" - as if feeling well and being well are independent phenomena.
So, in my case you chuckle to yourself as you realise you're having an unwinnable argument with people who are more interested in feeling smart that achieving any good, and get on with doing what works for you.
As for the "femtocell", thanks for the tip, I hadn't heard of it. But really, as I said in the previous comment, EMF in my environment is really not an issue I worry about, I only take care to avoid having a transmitting phone right next to my head as I sleep - given that good sleep is the most critical factor in overcoming fatigue.
I have a hyperhypersensitive relative, to the point of living with candles in the forest. And I consider her sick, just because like you said, it's hard separating feeling well and being well and there are a lot of serious research indicating that mind and body affect each other in ways we currently can't measure/imagine.
That said, my relative is very one-sided and wont acknowledge the mind part and is firmly convinced that it's only the physical phenomenon of em-waves that creates the physical reactions.
This person is old and uneducated so suggesting experiments is out of the question. However you seem like a scientifically aware person. So my question is, have you tested your ability? You said that you sleep bad when you know that you have a active phone beside your bed. Have you tried getting someone to place the phone in an shoebox either off or on for some weeks? It wouldn't be a double blind study so it wouldn't be super valuable but if that other person is scientifically minded it would be cool if you could get 100% coverage over a month. 10 days on, 10 days bad sleep.
Hey there, thanks for the generous sentiments and well-intentioned question.
That kind of trial isn't something I'd consider to be particularly valuable, as the whole issue of sleep quality and overall health is too complex for it to be possible to isolate one factor like this.
I should point out that at the times when I've experienced poor sleep with the phone on, I haven't been aware of it until I woke up the next day. It's been a case of waking up feeling less well rested, thinking "shit, why do I feel so terrible?", then reaching for my phone that had been sitting on the pillow next to my head and realising that it was turned on. So it is somewhat blind, without being scientific.
I certainly don't claim this experience as clear evidence that "cellphones impair sleep" – it's just one factor among several that seem to make a difference in my case.
It's this complexity that makes these kinds of illnesses so hard to understand and overcome. For me, good, refreshing sleep has been hard to achieve for many years, even with the phone turned off (though mercifully it's getting much better lately, as is my overall health and happiness).
And I know other factors make a difference too - what I ate/drank that day, what time I got to bed/sleep, what kind of exercise/activity I did that day, what my emotional state had been that day. Any one or combination of these factors on any given day could cause worse sleep than normal, so it would be very difficult to isolate the phone being on or off as a standalone factor.
Given all this, I'm perfectly open to the possibility that the phone being on or off is actually not a factor at all.
But given that (a) there is some established evidence that cellphone transmissions alter brain waves, and (b) it takes close enough to zero time/effort to turn off the phone's transmissions before going to sleep (as well as preventing interruptions from any calls or alerts that may happen during the night), I'm content to keep up the practice of keeping transmissions turned off when I sleep.
By the way, if you want a somewhat-scientifically based explanation that may help you understand what's going on with your relative, I'd recommend reading The Biology of Belief by Bruce Lipton. He has some colorful ideas and is easily dismissed by curmudgeonly skeptics, but his approach has solid scientific basis, and it's only by following the principles he recommends that I've been able to start enjoying such good health lately.
That aside, I wish you all the best for your relative's wellbeing.
http://www.who.int/peh-emf/publications/facts/fs296/en/
This leads people to think that this means that no-one can be effected, whereas it could be that the self-diagnosed simply have a large false-positive (a high-proportion of people that while believing to, do not have any hypersensitivity).
It also doesn't help that there have been no proposed mechanism by which EMF could act on the CNS/body. It also doesn't help that usually the signals complained about are orders of magnitudes smaller to other signals that people might just not be aware of/think about, like TV/Radio transmissions.
You're right that it's not very easy being in the fringes, here's hoping you get better.