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Sometimes I wonder I we should instead fund massive marketing campaigns instead, because the vast majority of people have no idea it's even an option.

> eosinophilic esophagitis

And how do you threat that ?


There are pills and a minor balloon dilation. The point is I would not be threated without it. Now I can go with my girlfriend for a dinner. That would be a huge stress before that.


> Patients should always advocate for their own care. This includes researching their own condition

I believe you do not fully appreciate how long and exhausting this is especially when sick...


Nothing he stated suggests this. Not giving a nod to how difficult it is doesn't mean people don't care. Unfortunately it is still true, we all have to advocate for our own care and pay attention to ourselves. The fact that this negatively affects the people who need the most care and attention is a harrowing part of humanity we often gloss over.


A boxing referee says "Protect yourself at all times."

They do this not because it isn't their job to protect fighters from illegal blows, but because the consequences of illegal blows are sometimes unfixable.

An encouragement for patients to co-own their own care isn't a removal of a physician's responsibility.

It's an acknowledgement that (1) physicians are human, fallible, and not omniscient, (2) most health systems have imperfect information sync'ing across multiple parties, and (3) no one is going to care more about you than you (although others might be much more informed and capable).

Self-advocacy isn't a requirement for good care -- it's due diligence and personal responsibility for a plan with serious consequences.

If a doc misses a diagnosis and a patient didn't spend any effort themselves, is that solely the doctor's fault?

PS to parent's insinuation: 20 years in the industry and 15 years of managed cancer in immediate family, but what do I know?


I see.

My question is, since you understand this very well, how successful are patients (that manage the effort) at both acquiring scientifically accurate knowledge and improving their health meaningfully?

And maybe share some tips like good knowledge databases?


I've seen patients (both family and non) meaningfully improve their health outcomes with statistically-significant frequency primarily via 4 methods.

1. Take ownership of their own medical records, learn them, and bring them to appointments. The most common failure in the current US medical system is incomplete/missing record transfer because of disconnected systems. Physicians will almost always attempt to confirm critical details, but that doesn't help if the patient says "I don't know."

2. Learn basic medical system-level knowledge relevant to a case. E.g. college 1xx freshman-level. No need to become an expert, but if a patient is dealing with kidney issues... it's pretty important to learn the basics about what kidneys are and do.

3. Ask about alternatives. "If we didn't go with that plan, what would be your next two recommended plans, and why aren't they first?" Having that alternative context is especially helpful when visiting specialists / other parties, as the patient can more fully describe the thinking behind their treatment plan. Also when researching online, the context helps avoid obvious pitfalls. (And yes, sometimes the reason will be "Because your insurance wouldn't cover X", which is also useful to know)

4. Use second options to measure uncertainty about the primary plan (e.g. everyone agrees vs it's debatable), but don't treatment-shop. The useful piece of information is opening a discussion about specific alternatives, while also listening to reasons against them.

Peer reviewed studies are surprisingly accessible (e.g. PubMed et al.), but they're also functionally useless without basic medical knowledge and details about a specific case.

Finally, for potentially lethal and/or lengthy conditions, I'm a firm believer that any empowerment improves outcomes simply by making the patient feel more involved and in control of their care.

Almost every "that could have been avoided" case I know was a willfully-ignorant and/or disinterested patient.


Its interesting how closely intertwined video games and computers are right from the early days!


Programming neovim in lisp whether it like it or not ;p


you mean lua?


> grep is one of the worse ways to refactor Hum? care to explain this?


Using Grep or regex is textual refactoring. If you want to rename every reference to a type Foo, how do you is that without touching any variables named foo, or any classes named FooBar

The answer is use tools that have semantic info to rename things.


I often want them to rename all the textual references too because otherwise you have bunch of variables using the old name as a reference.

Even though it has no semantic significance to the compiler, it does for all the human beings who will read it and get confused.


Another poster mentioned using symbols and references, another way to refactor code programmatically is to make use of code mods. Code mods are very powerful and this is a use case where I find LLMs to shine as the various syntax and language ASTs are hard to remember (even if you do understand what you're doing).


wait "19th Century Telegraph Chess" ??


Yes, it fell off the front page but it's this one: https://news.ycombinator.com/item?id=46243311


yeah.. let's make nvidia control more things..


Problem is that NVIDIA literally makes the only sane graphics/compute APIs. And part of it is to make the API accessible, not needlessly overengineered. Either the other vendors start to step up their game, or they'll continue to lose.


> Problem is that NVIDIA literally makes the only sane graphics/compute APIs.

Hot take, Metal is more sane than CUDA.


I'm having a hard time taking an API seriously that uses atomic types rather than atomic functions. But at least it seems to be better than Vulkan/OpenGL/DirectX.


oh! That's nice! sound even better since I just switch my user agent to chrome anyway.


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