Me and some of my colleagues are also Iranians living abroad, and this morning our account was deleted! We were already thinking to move to a self-hosted solution (rocket.chat likely), and this is a good reason to prioritize it.
Most of the human-subject research done in public health, sociology, and similar domains uses data collected in a similar way. They basically ask people to take notes on specific behaviour or fill short surveys multiple times a day (they call it ecological momentary assessment), then they analyze it in the context of their research.
So yes, a tool like this has value in helping with better understanding ourselves, but also can help population research as well.
Are you sure it wasn't a scam to rip you off? I'm born and raised in Tehran and numerous times I had gone out for dinner passed mid-night, and I simply walked into a restaurant, ordered the food, and ate (assuming the kitchen was still open).
Specially because people in Tehran prefer to have late supper compared to North Americans, it was a lot easier to find food options late at night than say in Toronto where past mid-night the only option is fast-foods.
There are a few other efforts towards this goal as well, and Apple ResearchKit is one of them, Funf is another one.
Two difference between Ethica and ResearchKit:
1. ResearchKit being from Apple, only works on iOS, while we are trying to have a tool for data collection from any platform, Android, iOS, smartwatch, etc.
2. ResearchKit is more of an API which can simplify coding of a research app, but still requires knowledge on iOS programming to get the app done, and then you need to deal with all other pieces you need to have an end-to-end product, the server, the back-end, data storage, etc. For many, this is way too much technical work to be able to use ResearchKit.
Overall, it's nice to see there are other groups working on this idea as well. It can attract more attention to this need.
I'm sorry to hear about this, but glad to know you are determined to fight this back.
I'm also Iranian, right now living in Canada. I will register ASAP, hope it can help you or other similar patients.
My sister was diagnosed with Leukemia when she was 18 as well (she is living in Iran) around 7 years ago, but she was cured and she is been living a healthy life since then. Don't loose your hope, try to stay positive, you definitely know how important it is.
One more thing, I think it's amazing that you have started this thread to discuss this. You can start an effort to raise awareness on Leukemia and use your technology background to reach as many people as possible. Hopefully one day enough people will register in BMDW, so no one has to stay in waiting list any more.
This is consistent with my statement above. The CIA admitted it had a role, which I acknowledge. They gave them money and assisted the local faction in the return of the monarch. And, since elections had been suspended, the depose was not democratically elected. The newspaper sensationalizes the actions of the CIA, and that has become the new narrative.
Well, my experience with LinkedIn has been very different. To start, I don't have my mom in my LinkedIn! Not only I have found my current job from LinkedIn, I also regularly received interview invitation for positions from other companies (from large scale ones like Google, FB, Amazon, etc. to smaller companies).
But to me the best advantage of LinkedIn is it helps separate professional relationships/conversation separate from my personal life. My contact network at LinkedIn showing my professional connections is very different than my contact network in Facebook, and while I use both, I don't want them to be mixed.
Plus, it keeps my CV and I don't have to always look for my CV in bunch of doc files if I have to send it to someone.
Maybe you would have a different experience if you would spend more time on setting it up? (writing the CV, adding the right people. etc)
Honestly, I put a good amount of effort into LinkedIn before quitting. I even subscribe to the job seeker's tier for a month before realizing what a piece of junk it was (pure vanity metrics, little substantial information of use).
My problem was actually getting too many recruiters contacting me offering me jobs out of my interest and it ultimately felt like that email inbox you check once a month to wipe only out the spam.
While I understand some developers find use in LinkedIn, I still think that this might be biased if alternative ways of job seeking weren't also simultaneously pursued. I believe that having a good GitHub, releasing products, blogging, tweeting, and attending meetups can all be affective means of network building.
I'm interested in how you use it to handle communication. I would never try and contact anyone through LinkedIn unless there were no other alternatives. In my experience there is so many junk notification on LinkedIn that any attempt at real communication would drown out.
I very much admire Obama administration to take a diplomatic approach on this issue, and I believe when hopefully these negotiations are succeeded, this can be an evidence that how a conflict can be resolved in peace without the need to start a new war.
